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https://www.theepochtimes.com/health/covid-19-vaccines-may-trigger-rheumatic-inflammatory-diseases-study-5508547

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[–] 2 pts

I'm so sorry to hear you got it! I got it when I was 17 from a 'required for college' DPT booster. I hobbled around like an old lady for years. Every joint was inflamed. I had no insurance and could only go to the doc when I saved up. Most of them shrugged it off and said 'tough luck. You can't afford any meds for it. Get out.' One said I just had bad genes.

It slowly started getting better after about 5 years. Looking back I think it was because I was hardly making any money and accidentally went on an inflammatory disease diet. I lived off a whole lot of cheap homemade foods. A lot of vegetables and broth made from them. Meat when I could afford it, but no grains, soy, or the like. I guess it gave my body the chance to stop attacking itself.

I still have autoimmune issues that I fight with daily. I really feel for you. My high school gym teacher saw me hobbling around and designed a whole workout program to try to help me since I was the only girl in the weigh lifting class and the boys were all doing their own thing. I'd been lifting and doing really well up until that point. I am really grateful to him and all he did for me that last year of high school. I kept up with all the stretching and body strength exercises through college because he said if I kept all curled up like I was and not moving from the pain I'd be a mess by 30. I fought through it and it wasn't easy.

I hope you can get the 'spontaneous remission' I have. I'm 44, now, and mess in other ways, so I don't know that anyone should take my advice lol but you could look into some of the anti inflammatory diets and see if one makes sense for you. I know some people who have gone carnivore have fixed it, as well.

[–] 0 pt (edited )

Thank you, I appreciate your reply. Would have replied sooner, but never got a big enough span of time to do so thoughtfully. It’s one of the three half days my boss is kind enough to work me, even though a seven year old would be a better choice when it comes to physical work. Thankfully my brain hasn’t been hampered and he can find value in it enough to allow for the shortcomings of the physical. That and he’s a good guy.

Sounds like you’ve been through the ringer! I’m only a year into it and don’t know how much more of it I can take. I can’t imagine 27 years of it! End of last spring I did have a slight bit of a respite, enough for me to get some blacksmithing projects done that I had been paid for and promised to get finished. Boy I had to learn new and convoluted ways of doing things to get them done. A lighter hammer being one of them and that required more heats so more time, more blows.

Physically it did help me to a degree, but it was so very painful afterwards each day. Pain so bad I couldn’t sleep. As summer came on the heat just dragged me down. A fatigue that overwhelmed me was quick to follow. This summer has been rough on me. Weird because every morning I take a hot shower and do my stretches there. It really helps everywhere but my ankles. You’d think sit’n in the warm southwest sun would do the same, and it does to some degree, but not near as well as a hot shower. I don’t get that.

Over the year I’ve spent a small fortune taking all the recommended non “Rockafeller” anti-inflammatories along with the you gotta let it build up in your system advice. Honestly, I can’t say a single one has relieved me of pain one iota. As for an anti-inflammatory diet as best I can, it doesn’t seem to matter. Within minutes of eating what’s not supposed to be inflammatory the pains begin. I’m at my wits end there. Lately though I’ve been trying to stick to a carnivore diet. So far little to no change.

Beginning to think I must have gotten the Fauci “gain of function” special edition of this shit. Lol, on an interesting note, I recently read an article that said people with the Neanderthal gene experience pain to a much greater degree than those without. They theorized it might of been what led to their demise.

Again, I do deeply appreciate your response and suggestions. Most people just don’t understand how brutal this shit is or what to even say about it, let alone what to do about it. Like yourself, I’ve found the “Rockafeller” adherents to be of very little help. Coming from the South, Virginia in fact, my grandmother would make pokeberry salads in the spring. We boys as lil’ fellers were always told not to eat the berries as they were poisonous. That’s all I knew about pokeberries. Having moved out west never saw them or thought of them again. A friend stumbled upon a jewtube clip about them while surfing prep’n videos. Turns out grandma neglected to inform us about the anti-inflammatory properties of the pokeberry! Evidently the Appalachian hill folk have been using the berries for hundreds of years to bring relief to RA sufferers. A seasonal berry so you need to either freeze or dehydrate them for year round use. Not many sellers of them online as you’ll see if you look. I’ve got some dehydrated ones coming from LA something or another. A seller or two on Etsy as well. A search of pokeberries on jewtube will show a farmer look’n fellow with ripe pokeberries if’n you care to seek out more info. Maybe you know of them? I’m gonna give them a try, I’ll let you know my thoughts on them after a bit with ‘em. I’ll try to edit this post tomorrow with the video.

Again, thank you and God Bless!

Oh yeah, and a good Neanderthal Ugg as well!

[–] 0 pt

Just to give you some hope, I may not have made it clear...Mine actually began to get better at the five year mark and after about two more it was gone. Every once in a while I have what might be flare-ups in my hands, hips, and feet, but never the full body deal I had for those years.

You can heal. My mom also went through about 5 years of it after my brother talked her into a tetanus shot after a cat bite. We've both gotten better from it. It may have just been time because she certainly does different diets than I do. She benefits more from vegan style diets, while meat based ones have always worked better for me.

Experimenting with diets and supplements is always a good idea to me. I have a cool traditional doc now who, though he doesn't like that I refuse a lot of his suggestions, will still talk to me and discuss research and order me blood tests. He even "diagnosed" me with some strange mystery disease so that my insurance will cover any bloodwork he orders. I just tell him what I want. Currently, I'm working on getting my thyroid antibodies down and after my next round of blood tests, I'm going to experiment with A1C.

I used to be able to get my own blood tests, but the local lab broke their website during covid and refuses to fix it. Trying in person to order labs is wild. "Why you need that? Where's your doctor's papers????" "You don't need to know and AZ has a law saying I can order these." "Well your insurance won't cover it." "I KNOW. It is why I am not handing you an insurance card." and on and on until finally they give in. It's not fun to do every 3 months, so having a "doctor's papers" works best.

I find things that work for me based on my bloodwork and how I feel. My doc was shocked at how I could tell him what my TSH (thyroid) would be just based on how I feel. I can usually guess within .5 points. So he lets me pick my own dosage of thyroid meds since I can keep my numbers stable - well not lets, you know what I mean, more of doesn't give me crap about it.

I will keep you in my thoughts. It's an awful thing to go through. Try to keep your flexibility as much as you can. I'm still not back to what I was before, but I was never particularly flexible, but it does make you just want to curl up and not move at all. Don't go strenuous, but keep moving.

I never took pain killers for it, so I don't have any suggestions in that department, but honestly, from what I can tell that's about all the RockDocs can give you. My naturepath gave me some stuff for my other autoimmune issues that helped a lot - low dose naltrexone (I take 4.5mg in the mornings), but I don't know if that's recommended for RA. I also take metformin for the anti-inflammatory properties (my current doc is fine with that too, because my fasting glucose is wacky from the thyroid, so he sees me as a type2 or pre-type2 anyway).

Again, I'll keep you in my thoughts and if I come across anything in my autoimmune journey that might help, I'll message.

[–] 0 pt

Interesting. I’m in AZ and a few days ago was told by my brother that a friend of his who had worked with RA patients said I should test for Lyme Disease as it is often confused with RA. Hadn’t even occurred to me that there are laws regarding who can order a blood test. So should I expect resistance from say Sonoran Quest Labs who is one of a few here that tests for it?

As I understand I am at risk for the beetus because of the RA. So far my numbers there are just below prebeetus. At least there’s that so far.

It’s crazy, you’d the body chemistry for this shit would be easier to figure out in this day and age.