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A relatively new addition to my list of symptoms. i don't smoke, never have, but somehow got diagnosed with a terminal lung disease. it used to be my brain was super sharp, quick on its feet. however, in the past few months, it feels like i have dementia or something. my brain gets dizzy all the time, and im having a hard time remembering even basic things. i dont mean like what i did that day, but i can converse with someone ive known for months or even years, and somehow i'm having trouble remembering their names, or what they do, or even where they live. it's like my brain is just incapable of doing any type of complex thinking anymore, and even driving is become a hassle. it used to be i could drive easily, but now my brain fills in pieces that aren't there, so i have a lot of weird hallucinations when driving (i know, probably shouldnt be driving anymore), i see things that aren't there when it comes to shadows and such, but i also routinely miss things that are there like other cars, and objects. and yet, not even a year ago or so, i could think so easily, solve complex problems, and do tons of stuff without a hitch. now i have trouble remembering to eat in the morning, or i simply no longer have the energy to care to cook.

even breathing itself is becoming a chore, my body simply forgets how to breathe, it will exhale very deeply, but then it feels like breathing in takes so much energy, i just feel like my body is so much more relaxed when it simply stops breathing for a few seconds. at least the chest pain goes away for a fleeting second. sleeping is the worst, i have chronic jaw pain, chest pain, my heart feels like absolute crap, my brain feels dizzy, but the body refuses to sleep.

my latest doctor said i was relatively healthy for what i have, im not healthy at all, but given the circumstances, im still pretty fit, and can still do exercise. i currently sit at around 21% lung capacity on a bad day, and 29% lung capacity on a good day. basic walking is becoming difficult, my heart rate goes up to around 160 on an elliptical on low settings, and saturation goes down to around low 80s. we;re not talking supreme exercise here either, we're talking light stroll around a park. i always thought i would die in a cooler way than this, but maybe this is god's way of telling me i have a purpose. kinda like a kamikaze going to battle, i have come to the realization that since i do not fear death, i also do not feat the future ... in minecraft of course

A relatively new addition to my list of symptoms. i don't smoke, never have, but somehow got diagnosed with a terminal lung disease. it used to be my brain was super sharp, quick on its feet. however, in the past few months, it feels like i have dementia or something. my brain gets dizzy all the time, and im having a hard time remembering even basic things. i dont mean like what i did that day, but i can converse with someone ive known for months or even years, and somehow i'm having trouble remembering their names, or what they do, or even where they live. it's like my brain is just incapable of doing any type of complex thinking anymore, and even driving is become a hassle. it used to be i could drive easily, but now my brain fills in pieces that aren't there, so i have a lot of weird hallucinations when driving (i know, probably shouldnt be driving anymore), i see things that aren't there when it comes to shadows and such, but i also routinely miss things that are there like other cars, and objects. and yet, not even a year ago or so, i could think so easily, solve complex problems, and do tons of stuff without a hitch. now i have trouble remembering to eat in the morning, or i simply no longer have the energy to care to cook. even breathing itself is becoming a chore, my body simply forgets how to breathe, it will exhale very deeply, but then it feels like breathing in takes so much energy, i just feel like my body is so much more relaxed when it simply stops breathing for a few seconds. at least the chest pain goes away for a fleeting second. sleeping is the worst, i have chronic jaw pain, chest pain, my heart feels like absolute crap, my brain feels dizzy, but the body refuses to sleep. my latest doctor said i was relatively healthy for what i have, im not healthy at all, but given the circumstances, im still pretty fit, and can still do exercise. i currently sit at around 21% lung capacity on a bad day, and 29% lung capacity on a good day. basic walking is becoming difficult, my heart rate goes up to around 160 on an elliptical on low settings, and saturation goes down to around low 80s. we;re not talking supreme exercise here either, we're talking light stroll around a park. i always thought i would die in a cooler way than this, but maybe this is god's way of telling me i have a purpose. kinda like a kamikaze going to battle, i have come to the realization that since i do not fear death, i also do not feat the future ... in minecraft of course

(post is archived)

[–] 3 pts

I've got an auto-immune thing that's eating away at my body. It'll kill me soon, but I'm not sure if it'll be a month or a year. You have my sympathy and I hope your final journey is quick and painless.

You could be going hypoxic more than you think. That will definitely lead to brain damage over time. There are various devices which can measure your o2 sat (like an apple watch of some version or other). You should track it over a 24 hour period and see which occasions make it the lowest. Those are what you need to work hard on fixing. There are various breathing exercises that will help you raise your o2 saturation. Most people who haven't been smoking their entire life can't much toleration o2 sats below 95%. If your decline has be quick (like a few years) then your body I still acclimating to the low o2 levels.

[–] 1 pt

Hypoxia is very real, it's absolutely horrible and insidious how destructive hypoxia can be, it almost feels like having dementia. One minute you're on top of the world, and the next you can't even remember how to walk. my o2 is constantly in the low 90s at rest, with a very low heart rate (usually in the 40s), but during exercise, it goes down to the low 80s, with tachycardia (usually my heart rate is in the 160s with light exercise)