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So I was looking at my old records. From what I can tell, I have around 30% lung capacity (my FEV1 is trailing around 30% on a PFT day, and FEV1/FVC is around 35 - 40%). For those not in the know, FEV1 is how much you can breathe out in one second, FEV1/FVC is how much you can breathe out vs total volume. Both shoud be around 85 or more.

I noticed when sleeping that my lungs get inundated with mucus and phlegm, causing the insomia I have. I also noticed that edibles dont do shit against this disease. It's like the disease's progression has surpassed all hope, and has morphed into this terminal issue with no real recourse. And Im not saying this as someone who is terribly depressed over it. Nothing seems to be getting my weight anymore, i tried gouging myself on crackers and the dirtiest food i can find, and i lost even more pounds this morning (im now down to 135. I used to be around 175 not even a year ago).

My doctors feel like theyre just throwing shit on the wall and seeing what sticks, to no real success. One guy gave me meds that aggravated the condition, I went from half lung capacity straight down to the low 40s. And the progression of the disease is now measured in months when it used to be years. I went from around 55% lung volume in 2018 (when my wife was still alive), 2019 went down to around 42%, 2020 went down to around 38% capacity, and 2021 it's gone down to 32% capacity.

So it was nice knowing everyone, but i think ive come to the inevitable conclusion I will most likely be dead within the decade. So if anyone wants to start a civil war, dont forget to message me, because i honestly dont give a fuck anymore

So I was looking at my old records. From what I can tell, I have around 30% lung capacity (my FEV1 is trailing around 30% on a PFT day, and FEV1/FVC is around 35 - 40%). For those not in the know, FEV1 is how much you can breathe out in one second, FEV1/FVC is how much you can breathe out vs total volume. Both shoud be around 85 or more. I noticed when sleeping that my lungs get inundated with mucus and phlegm, causing the insomia I have. I also noticed that edibles dont do shit against this disease. It's like the disease's progression has surpassed all hope, and has morphed into this terminal issue with no real recourse. And Im not saying this as someone who is terribly depressed over it. Nothing seems to be getting my weight anymore, i tried gouging myself on crackers and the dirtiest food i can find, and i lost even more pounds this morning (im now down to 135. I used to be around 175 not even a year ago). My doctors feel like theyre just throwing shit on the wall and seeing what sticks, to no real success. One guy gave me meds that aggravated the condition, I went from half lung capacity straight down to the low 40s. And the progression of the disease is now measured in months when it used to be years. I went from around 55% lung volume in 2018 (when my wife was still alive), 2019 went down to around 42%, 2020 went down to around 38% capacity, and 2021 it's gone down to 32% capacity. So it was nice knowing everyone, but i think ive come to the inevitable conclusion I will most likely be dead within the decade. So if anyone wants to start a civil war, dont forget to message me, because i honestly dont give a fuck anymore

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[–] • 2 pts

Well, here's my 2 cents lol. Disclaimer, I am not a doctor. If your losing that much weight and you are eating above maintenance callories( this is a big one, track your cals to be sure) but you are still losing weight in my mind that's 1 of 2 possible things. 1 - Your losing fluids faster than you can replenish, aka your in a state of dehydration. That might be related to the lung inflamation I'm not sure. 2 - You have some insane cellular metabolic activity going on and your body is in an extreme demand for calories in its efforts.

As far as the first 2 laws of thermodynamics goes, you are either burning more calories than you are consuming or your losing water.

Also, no matter what happens, try and find peace. I know that's probably ungodly hard at the moment but if its any consolation, you have a community here that cares.

[–] • 2 pts

One finding the doctors did find is that my body requires significantly more calories than a normal person. Apparently I need to be eating 3000 calories a day, and yet my body can only tolerate eating 1250 - 1500 calories a day. On a very bad day my body will shut down all eating for up to 24 hours, which is usually how long my body needs to process large meals, assuming im not super sick within the first few hours. I've been trying shakes for now, hoping that works, but my bowels have a very hard time even processing a small milkshake or protein shake

[–] • 2 pts

Tell your doctor that, you might be a candidate for some intravenous feeding.

[–] • 0 pt

Have you done an organic turpentine cleanse? Not saying it will work but you might as well try. My condolences on your condition