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257

So I was looking at my old records. From what I can tell, I have around 30% lung capacity (my FEV1 is trailing around 30% on a PFT day, and FEV1/FVC is around 35 - 40%). For those not in the know, FEV1 is how much you can breathe out in one second, FEV1/FVC is how much you can breathe out vs total volume. Both shoud be around 85 or more.

I noticed when sleeping that my lungs get inundated with mucus and phlegm, causing the insomia I have. I also noticed that edibles dont do shit against this disease. It's like the disease's progression has surpassed all hope, and has morphed into this terminal issue with no real recourse. And Im not saying this as someone who is terribly depressed over it. Nothing seems to be getting my weight anymore, i tried gouging myself on crackers and the dirtiest food i can find, and i lost even more pounds this morning (im now down to 135. I used to be around 175 not even a year ago).

My doctors feel like theyre just throwing shit on the wall and seeing what sticks, to no real success. One guy gave me meds that aggravated the condition, I went from half lung capacity straight down to the low 40s. And the progression of the disease is now measured in months when it used to be years. I went from around 55% lung volume in 2018 (when my wife was still alive), 2019 went down to around 42%, 2020 went down to around 38% capacity, and 2021 it's gone down to 32% capacity.

So it was nice knowing everyone, but i think ive come to the inevitable conclusion I will most likely be dead within the decade. So if anyone wants to start a civil war, dont forget to message me, because i honestly dont give a fuck anymore

So I was looking at my old records. From what I can tell, I have around 30% lung capacity (my FEV1 is trailing around 30% on a PFT day, and FEV1/FVC is around 35 - 40%). For those not in the know, FEV1 is how much you can breathe out in one second, FEV1/FVC is how much you can breathe out vs total volume. Both shoud be around 85 or more. I noticed when sleeping that my lungs get inundated with mucus and phlegm, causing the insomia I have. I also noticed that edibles dont do shit against this disease. It's like the disease's progression has surpassed all hope, and has morphed into this terminal issue with no real recourse. And Im not saying this as someone who is terribly depressed over it. Nothing seems to be getting my weight anymore, i tried gouging myself on crackers and the dirtiest food i can find, and i lost even more pounds this morning (im now down to 135. I used to be around 175 not even a year ago). My doctors feel like theyre just throwing shit on the wall and seeing what sticks, to no real success. One guy gave me meds that aggravated the condition, I went from half lung capacity straight down to the low 40s. And the progression of the disease is now measured in months when it used to be years. I went from around 55% lung volume in 2018 (when my wife was still alive), 2019 went down to around 42%, 2020 went down to around 38% capacity, and 2021 it's gone down to 32% capacity. So it was nice knowing everyone, but i think ive come to the inevitable conclusion I will most likely be dead within the decade. So if anyone wants to start a civil war, dont forget to message me, because i honestly dont give a fuck anymore

(post is archived)

[–] • 4 pts

My mom smoked menthol like a chimney, had a pack in every room when I was little.
It caught up with her, didn’t kill her, but contributed. The plus side, is o2 concentrators are smaller and cheaper now. I’ll say a prayer for you, and your decade. God bless

[–] • 4 pts

OP, you may be dying and your body may be shutting down, but you're still a faggot.

[+] [deleted] • 3 pts
[–] • 3 pts

HEY OP!!! Let me try to help. I just discovered a miracle lung/liver drug called NAC, N-Acetyl L-Cysteine. L-Cysteine stimulates production of glutathione. The FDA is trying to ban it. I noticed a big difference after starting to take it. Take 600MG daily. I bought the powder form since the supplement kind was more expensive. I measure out the 600MG on a scale and mix with water. It has made a big difference in my health. For instance my wife just came down with a really nasty bug the other day and she brought it home and got my kids sick. Me on the other hand taking NAC did not. So its worth a shot and if it doesn't work shit you are only out 20 bucks.

[–] • 3 pts

Have you tried N-Acetyl-Cysteine? It's a precursor to the body's strongest antioxidant, gluthianone. It helps relieve mucus and phlegm, and it's proved helpful in COPD treatment and a multitude of other health conditions.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4744393/

[–] • 2 pts

Not that you're necessarily looking for advice, but sharing in case this could help: https://www.organicauthority.com/health/mullein-herbal-tea

Best of luck. Sorry to hear about worsening symptoms.

[–] • 2 pts

OP, look into fungal diseases. I'm finding with myself and many people I know personally that often fungal infections are misdiagnosed as other chronic conditions.

Apart from drugs, this is often treated successfully with diet though it does take time.

[–] • 2 pts

Actually this is a good response. Black mold infestation can have very long lasting effects even if the exposure was minimal. It can devastate your lungs. Candida in your gut could possibly be responsible for the your body’s inability to process food. Especially if you’ve had a high carb diet.

You might ask your doctors to test for various fungi.

[–] • 2 pts

Well, here's my 2 cents lol. Disclaimer, I am not a doctor. If your losing that much weight and you are eating above maintenance callories( this is a big one, track your cals to be sure) but you are still losing weight in my mind that's 1 of 2 possible things. 1 - Your losing fluids faster than you can replenish, aka your in a state of dehydration. That might be related to the lung inflamation I'm not sure. 2 - You have some insane cellular metabolic activity going on and your body is in an extreme demand for calories in its efforts.

As far as the first 2 laws of thermodynamics goes, you are either burning more calories than you are consuming or your losing water.

Also, no matter what happens, try and find peace. I know that's probably ungodly hard at the moment but if its any consolation, you have a community here that cares.

[–] • 2 pts

One finding the doctors did find is that my body requires significantly more calories than a normal person. Apparently I need to be eating 3000 calories a day, and yet my body can only tolerate eating 1250 - 1500 calories a day. On a very bad day my body will shut down all eating for up to 24 hours, which is usually how long my body needs to process large meals, assuming im not super sick within the first few hours. I've been trying shakes for now, hoping that works, but my bowels have a very hard time even processing a small milkshake or protein shake

[–] • 2 pts

Tell your doctor that, you might be a candidate for some intravenous feeding.

[–] • 0 pt

Have you done an organic turpentine cleanse? Not saying it will work but you might as well try. My condolences on your condition

[–] [deleted] • 1 pt

I got some real results by elevating the head of my bed several inches higher than the foot of the bed. It keeps everything draining in the right direction while I sleep.

[–] • 1 pt

Repent and believe in the Gospel. Be baptized and received into the Church.

[–] • 1 pt

Already done

[–] • 1 pt

Praise God!

I will keep you in my prayers and please keep me in yours. Recall all of the great Saints who suffered long and now are enjoying the glories of that suffering. Don't forget to offer it up to Jesus as a sacrifice; redemptive suffering is powerful stuff.

[–] • -2 pt

Why did your god allow OP to even get this ill? You want him to be thankful to a diety that does things like this to innocent people?

[–] • 4 pts

Wow, in 2,000 years of Christianity, no one has ever pondered or answered that question.

If I thought that you were serious, I'd give you an actual response.

[–] • 0 pt

I was more curious as to your reply. Because I've heard the standard unwilling / unable explanations already.

[–] • 1 pt

2,000 mgs. POWDER drinkable Vitamin C everyday , comes in a box of packets '. Im sure your doctor's didn't tell you about that . I'm sorry about your lung disease .😔 . Vitamin C 2000 MG . Daily . Break it up if it upsets your stomach 1,000 MG morn and evening . Prebiotics for digestion issues . Your body is losing weight partly because your lungs cannot properly oxygenate a hefty or normal weight body mass .

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