I have stage 3 emphysema, or whatever its called now. It's a terminal lung disease, and by the admission of the medical community, is not curable, and is not stoppable. It's a one way ticket to death, regardless of how many medications you throw at it. Now i noticed something, the terminal disease gets better when i exercise, and eat keto. The pharma/doctor mechanism was to throw a bunch of deadly steroid which have all been known to spontaneously kill people. Ironically i didn't use the medication at all for 6 months, and the doctors told me the meds are showing marked improvement!
Glad you're feeling better. I too, told doc's I was taking 50mcg's of meds when I was actually taking 25 mcg's. When my blood test came back, the doc says "you're doing great on 50 mcg's, stay the course". I've also stopped taking meds altogether. Get the blood test back, says i'm just fine. Cannot emphasize enough, you absolutely have to be the one in charge of your health.
The inevitable conclusion is that i will die, i do not expect there to ever be a "quick" fix for terminal lung disease, not now and not 100 years from now. There's also from what i can tell no research being done to actually create better treatment plans, because treating this disease is hard, and not at all intuitive. Smacking someone with a stimulant so they can have their heart work overtime to compensate is not, in my eyes a solution. Nor is shoving oxygen into their lungs a real solution either. So essentially, take the tubes and complete detriment to life or die is the solution according to these whackos?
I was diagnosed with P.O.T.S. which "has no cure" and was debilitating enough to cost me a job where I was almost making 6 figures because I couldn't walk across a room without my heartrate spiking to 150 and almost blacking out. I was prescribed steroids, beta blockers, gabapentin, antidepressants, vasoconstrictors, DANGEROUS medications. I didn't take most of them. Instead, I had a revelation that my worst symptoms would occur after eating. I have no official "allergies", but did an elimination diet and kept a food journal (also monitored blood sugar) and discovered triggers. I changed to gluten free, dairy free, lots of protein, minimal sugar, minimal if any alcohol. I am no longer on any medications. Last year I traveled and swam with whale sharks. (The year prior I couldn't walk up 1 flight of stairs and my Dr at some point said "I'm sorry I can't help you" without EVER ONCE inquiring about diet.) I am incredibly convinced that most common/processed food is pure poison and a huuuge part of illness is diet-based. But big pharma doesn't make money off of my conclusion. Eat well, my friends.
Ironically these are roughly the same medication group prescribed for COPD/Emphysema. Just like you I noticed a keto, low carb diet works wonders, and removing alcohol also worked. They tried putting me on a pulmonary rehab program, except the stuff i do in rehab is 10 times weaker than what i do at home. They walk me on this treadmill, but the cardio i do at home involves rock climbing. They have these small weights, but the weights i use at home are 3 times their maximum weight. It's all useless
Yeah! Eventually they would have told me to get a wheel chair! My stamina still isn't super great, but now I go on hikes that are a few miles long and am able to follow work out videos (switching from laying down to standing, etc pretty quickly) without my heartrate going insane or getting tunnel vision.
By the way, I ran across mention of the "gut-lung" axis the other day. You might do some research into it. Perhaps applicable for COPD? https://www.mayoclinic.org/medical-professionals/pulmonary-medicine/news/the-gut-lung-axis-intestinal-microbiota-and-inflammatory-lung-disease/mqc-20483394
Best regards to you!
You’ve been telling them you’ve been taking the meds when you actually haven’t? I’m glad you’re feeling better, and I’m certain they probably would keep pushing that poison on people regardless, but maybe you should tell them diet and exercise was your solution... but hey, they’d probably be upset since they can’t make money promoting that sort of stuff.
Yeah, i dont actually mention anything at all, i just follow up because the spirometry tests always interest me. Also, I tried telling them multiple times that i dont want their poison pills, but they keep subscribing them, so i gave up trying to tell them anything.
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